Our expert team provides comprehensive diagnostic care, 包括胎儿超声心动图, and clinical management for families in the greater 坦帕 Bay area and beyond
When you learn that your unborn baby has a congenital heart defect, 从一个富有同情心的团队那里接受专家护理是很重要的,这将帮助你了解宝宝的诊断和治疗方案.
The fetal heart team at Johns Hopkins 儿童医院 in St. 彼得堡, 佛罗里达, provides you and your unborn child with expert, personalized care that addresses your child’s individual needs, from your first appointment with us through your child’s birth. Our team provides a full spectrum of services, including fetal diagnostic testing and clinical management before, 交货期间和交货后.
先天性心脏缺陷的诊断给孩子的出生带来了许多问题, 全面健康和发展, 以及对整个家庭的影响. We work with you to explain your baby’s specific heart condition, 回答你所有的问题,讨论治疗方案,根据我们的经验和最好的研究制定一个护理计划.
Why Choose Johns Hopkins All Children’s
我们的团队包括经过认证的儿科心脏病专家,他们与我们的心脏外科医生密切合作, fetal echocardiography sonographers and maternal-fetal medicine specialists.
Our approach to care is multidisciplinary. 我们的心脏病专家与整个医院的专家一起为您和您的宝宝提供护理.
If your baby needs surgery after birth, he or she will receive care from our cardiac critical care and neonatology teams. 你的孩子可能会在我们的 neonatal intensive care unit (NICU) or cardiovascular intensive care unit (CVICU) depending on their condition and needs.
我们的新生儿重症监护室获得了佛罗里达州卫生保健管理局(AHCA)的四级认证. 这是现有的最高水平,表明我们拥有最先进的生命支持和监测技术来照顾危重婴儿. 我们的CVICU还提供由儿科心脏病专家组成的高级重症监护, 心脏外科医生, 心脏重症监护医师, respiratory therapists and other pediatric experts.
您与我们的第一次预约将包括胎儿超声心动图,以准确诊断出您的宝宝出生前的心脏状况. 我们的胎儿超声心动图项目是由胎儿超声心动图的跨社会认证委员会(IAC)认可的, 小儿经胸超声心动图和小儿经食管超声心动图. 我们经验丰富的胎儿超声心动图超声技师通过了美国诊断医学超声技师(ARDMS)的认证,特别是在胎儿超声心动图方面.
You can also learn more about our heart surgery program’s outcomes by viewing our 患者安全 & 质量部分. 约翰霍普金斯儿童心脏研究所致力于分享我们的经验, outcomes and safety measures to help you decide what’s right for your child.
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认识我们的团队
见见胎儿心脏病学专家 who care for our patients at Johns Hopkins All Children’s.
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关于我们的胎儿心脏项目
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先天性心脏缺陷是指婴儿的心脏在出生前没有正常发育(“先天性”是指“出生时就存在”)。. 这些缺陷可能是结构性的或功能性的:结构性缺陷影响心脏的形成方式和血液流经心脏的模式, while functional diseases affect the way the heart works, 即使它是正常形成的.
我们治疗一系列先天性心脏缺陷,包括家族遗传缺陷,例如:
- 主动脉瓣狭窄
- 房间隔缺损
- 心肌病
- 复杂的心内异常
- 右心室双出口
- 胎儿心律失常
- Hypoplastic left heart syndrome and other single ventricle heart defects
- 二尖瓣和三尖瓣疾病
- 肺动脉瓣狭窄
- 法洛四联症
- Total anomalous pulmonary venous return
- 大动脉转位
- 动脉干
- 室间隔缺损
患有心脏病的婴儿有时也有其他需要高级专门护理的疾病. We have expertise in working closely with other specialists in the Center for Congenital Diaphragmatic Hernia, 食管和气道项目, 小儿普外科项目 and others to care for children in these complex cases.
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胎儿超声心动图是一种用于拍摄婴儿心脏照片的超声波, 检查心脏的结构, 功能与节奏. We offer a full panel of diagnostic testing and services including:
- High-resolution, three- and four-dimensional fetal echocardiograms
- Fetal oxygen testing to monitor lung function
- 胎儿家心率/节律监测程序,跟踪严重的心律异常
- Evaluation and treatment of fetal heart failure
- Evaluation and treatment of twin pregnancy complications
在解剖扫描中发现胎儿心脏问题后,患者通常会到我们的项目进行胎儿超声心动图检查, 这发生在妊娠18-22周之间(通常被称为20周超声)。.
在极少数情况下,如果母亲在早期遗传筛查、超声检查或血液检查中发现异常结果,心脏缺陷可能在妊娠12-13周被发现. In these cases, we also offer early fetal echocardiogram.
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你的产科医生可能会推荐你做胎儿超声心动图有几个原因,包括:
- Abnormal obstetrical ultrasound or suboptimal views of the fetal heart
- Fetus has kidney, brain, lung, liver, bowel or other organ system problems
- Chromosome differences or genetic syndromes such as Marfan syndrome, 迪格奥尔格综合征, 结节性硬化症
- 胎儿心率或节律问题
- 患有糖尿病的妈妈, 红斑狼疮, Sjogren’s disease or other autoimmune disease, or on medications that could affect the fetus
- 患有儿童心脏病或在儿童时期需要心脏手术的家庭成员
- Family member with phenylketonuria (PKU), or other metabolic conditions
- In vitro fertilization (IVF) or multiple gestations
- 易漏诊
- 产妇感染
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- 在你的预约期间, 经过特殊训练的超声技师将进行胎儿超声心动图检查,以获取胎儿心脏的图像.
- 儿科心脏病专家会检查这些图像,并和你坐下来解释诊断结果, counsel you about treatment options, and answer any questions you may have. The cardiologist can also refer you to any additional specialists as needed.
- 你可以见见我们的外科医生, 母胎医学专家, 新生儿学专家, 遗传咨询师和其他人. 在我们位于圣. 彼得堡, 你可以参观一下医院,见见会照顾你宝宝的医疗团队成员.
- 我们的母胎医学专家和高危产科医生可以安排分娩 Orlando 健康 Bayfront Hospital Center for Women and Babies这是一家位于约翰霍普金斯儿童医院内的高危分娩专业中心.
- 如果你在其他地方交货, 我们经验丰富的运输团队可以将新生儿送到我们97张床位的新生儿重症监护病房(NICU)或22张床位的心血管重症监护病房(CVICU)。. All rooms in our CVICU are single-patient, private rooms and have sleeping accommodations for two parents.
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所提供的链接仅供参考,仅供用户方便使用.
Our team works seamlessly to support each family’s journey. 我们提供社工服务和牧师服务,以满足推荐十大正规网赌平台家庭的社会需求, 情感或精神需求. The Child Life team supports families in the CVICU, 帮助推荐十大正规网赌平台应对住院生活,也帮助兄弟姐妹了解他们兄弟姐妹的病情.
我们还参加了 修补小心, a support group organized by parents of children with congenital heart disease. “修补小心”有专门针对佛罗里达州的团体,为我们地区的家庭提供社区和支持. Your child’s care team can help to connect you with 修补小心.
麦当劳之家慈善机构还为本地以外的住院和门诊家庭提供一个家外之家. 在约翰霍普金斯大学所有儿童的主校区有三个麦当劳之家. 住在坦帕湾地区以外的准妈妈们可以在那里免费呆上一两周. A “day use” program is also available for family members of a hospitalized child.
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ConqueringCHD.org – Important questions to ask your care team
SistersByHeart.org – Support group for families affected by single ventricle heart defects
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欲了解更多信息或预约,请致电以下电话号码. We serve patients in the greater 坦帕 Bay area and beyond.
给我们打电话
打电话给727-767-8481
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